Over a thousand families with severely disabled children are facing an impossible decision due to cracks in state and federal funding.

Stuart Latham’s 11-year-old son Henry is one of the many children affected.

Henry is able-bodied but has a major intellectual disability, meaning he requires 24-hour specialist care.

The Latham family has now been told since the National Disability Insurance Scheme (NDIS) took control early last year, they could no longer fund Henry’s care.

For Henry to get the care he requires, Stuart and his wife would have to relinquish care of him and make him a ward of the state.

The Lathams, along with 1,700 other families, are now stuck between two bureaucratic giants with neither the NDIS nor the NSW Government claiming responsibility.

Stuart tells Ben Fordham families are in dire straits.

“Right now there are families that are confronting this awful dilemma of being told that they’ll have to relinquish their children to have continuity of support.

“There are families out there in crisis, that are in dire straits that need assistance and need support.

“We’ve got this giant crack opening up between the two systems between NDIS and the NSW Government no one is taking responsibility for it.

“We’ve got service providers who aren’t being funded, they’re reaching into their own pocket to keep these kids well and safe and they’re going to the wall.

“Enough’s enough.”

Click PLAY below to hear Stuart’s story